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Saturday 141010

10
Oct

Saturday 141010

CrossFit Surge and Maximized Living Adjustments for Life Presents:

Community 5K Fun Run:    WOD: Run a 5k…..Don’t Cherry Pick!!!!

The Fun run is upon us!! Here is the schedule for tomorrow:

7:30-8:30 Registration/Raffle drawing $10 for the run…coffee drinking. We will have Starbucks!
8:30-Opening remarks  Mindy will be there as well! If you have never meet her, here is your chance!
8:40-9:00 Warm up/Stretch
9:00 Run starts

The run will be timed…there will be a clock out there for you to watch your time You will have two options: 1)Run/Walk the actual 5K, which will have a turn around by the Thornton Rec or 2) do the entire loop, which is about 3.9 miles. Totally up to you.

Raffle will start about 10:15-10:30 once everyone is back. Tickets will be $1 each, $5 for 6, $10 for 14 or $20 for 30 PLEASE BRING CASH!

Dr. Joe will be set up to do adjustments after the race and Phil will be there will some samples of Paleo food for his home delivery food service.  Rock Star will also have a booth set up!

We have lots of stuff to raffle off from:
Bad Daddy Burgers
Good Night Irene Massage
Water World Passes
Sports Authority
Bass Pro Shops
Cabela’s
Hana Matsuri
King Soopers
J.D White Financial adviser
Clementine’s Boutique
Qdoba
Bath and Body Works
Mary Kay
Rocky Mountain Extreme
Twisted Scissors
Floyd’s
Krispy Kreme
2nd Time Sports
Car Wash

With goodie bags items from Max Muscle, Chick Fil A, and Vitamin Shoppe

If parking gets crazy you can park across the street by the baseball field.

*At the end of the event there will be a raffle with prizes from local vendors.  Proceeds will go to the Leukemia & Lymphoma Society in honor of Mindy Facey.  Mindy is a local business owner (Rocky Mountain Xtreme) who has just undergone a bone Marrow transplant.

Before treatment
Before treatment
After treatment
After treatment

 

Mindy is Courtney’s sister in law and many of you know Lauren, Megan and Donavon. She is of course their mom.

Mindy’s back story: Written by her:

About five years ago, I was diagnosed with Chronic Myeloid Leukemia (CML). About 15 years ago, prior to the latest drugs, the disease was about 90% fatal at 5 years. Since the new drugs were introduced, that ratio has basically flipped with about 90% of folks still alive at 5 years. The new drugs are called tyrosine-kinase inhibitors (TKIs), and they are really at the forefront of cancer treatment. They stop the mutated cancer cells from replicating instead of trying to eradicate the cancer cell by some other means. They attack the cancer at a specific point (targeted therapy) instead of traditional chemo or radiation (which destroys a lot of cells, good and bad). However, since they only control the disease while a patient takes them, the presumption is that patients would need to take them indefinitely.

At this point, I have been on five different TKIs. I won’t bore you with the details of 5 years of cancer treatment – maybe some highlights in another post – but I typically have really good response to the drugs and the leukemia will stay undetectable at recommended doses. That means there are so few mutated white blood cells in my blood that the test can’t see them. It doesn’t necessarily mean the number is absolutely zero, but by traditional cancer standards, I would be said to be in remission though I’m still undergoing treatment. The good news is that the disease is under control, but the problem has been that the side-effects from the TKIs have been brutal.  All included extreme fatigue and pain along with some combination of depression, suicidal thoughts, extreme diarrhea and GI issues, vision problems, etc. And there is little research about the long term effects of taking these medications. A lifetime of those side effects, plus the long term implications of medications and ultimate physical deterioration from the fatigue is not something I want to live with.

Prior to the TKIs, the only cure for the disease was a bone marrow transplant and that remains the case. The downside to transplants is the prospect of chronic graft-versus-host (GVH) disease. Some GVH is generally helpful because it includes a graft-versus-leukemia (GVL) element which helps the new immune system eradicate any residual cancer cells. Transplant donors come in essentially three flavors: a matched unrelated donor, a matched sibling donor, or an identical twin. I am lucky to have an identical twin sister. Using an identical twin means that there is no possibility of GVH, but the relapse rate after the transplant is higher because there is no GVL.

In September, we made a trip to Seattle to talk to the one of the most respected CML transplant doctors in the field. His assessment was that a transplant is a viable option if I continue to be unable to tolerate the TKIs. And he felt that the transplant, in combination with my good response to the TKIs and undetectable status, would lower the risk of relapse. Even if I relapse after the transplant, the option of doing a transplant that’s about 75% likely to cure the CML with no big downside makes the most sense at this point. Of course, the transplant will be very unpleasant, but it’s very unlikely to kill me at my age and physical condition. With no chance of GVH, the most likely risk is relapse and I will end up back where I am now.

Mindy had a bone marrow transplant on July 32, 2014 and so far everything is looking positive!!!

To read more of her story you can visit. http://www.caringbridge.org/visit/mindyfacey/journal

 

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